The Things that Make You Brave (A Letter to Jack)

Dear Jack,

On this day one year ago, your mom and I put you into a hospital gown, and you let us do it. You knew what was coming. We had talked about it for weeks. Then, a nurse came and poked you, and you got sleepy. They wheeled you into another room, and when you got anxious, they read your list of movie titles until you relaxed and sleep came. And for the next weeks, you endured weakness and funny medicine and strange dreams and mystery pains in the back of your head. You didn’t like any of it, but you endured.

It was a strange few months after that. Do you remember the panic attacks that came every night? Do you remember when we moved your brothers out of your room so they could sleep? We may never know if that happened because of your surgery, or if it was an autism thing or something else. But what we do know is this: you made it through that dark season. You emerged, and you showed us the things that make you brave.

People have lots of funny ideas about courage these days. You see it in some of the movies you watch. One idea goes like this: “Courage is having the strength to be who you really are.” And this sounds good to us, because sometimes we all get embarrassed over things that are really just fine. Like when you flap your socks. Some people might not like when you do that, but you don’t care much, and I’m glad you don’t care. You shouldn’t have to care. You should be free to be yourself.

But I don’t think courage is like that most of the time. In fact, most of the time, being ourselves is pretty easy. We know our favorite movies and our favorite foods. We know whether we want to go to parties, or to hang out with our brothers and sisters. We don’t need to be brave to choose those things. We just have to do what’s most comfortable.

Maybe you didn’t think you were brave at all this past year. Remember in those really hard days when you would scream, “I ain’t a coward!” like Arlo in The Good Dinosaur? Maybe you thought that because you were afraid at night, you didn’t have any courage. But you did. You know how I know? Because ever since those dark days, you have have been making so many hard choices. And it’s been awesome to watch.

For example, remember those days last summer, when Mom and miss Beth took you to the bowling alley, to the movie theater, and the mini-golf place? You didn’t want to do those things at first because you really love just being home with your shirt off and your movies on. But your siblings stay home all the time so you can do those things, and this summer, they wanted to go have more adventures. So you chose to go out. And that was a good choice, son. You even started to enjoy yourself.

On one of those outings, mom took you to the trampoline park. Before your surgery, you’d had such a hard time using the left side of your body. But over the months, you had worked hard in OT until you were able to do this. It wasn’t your first choice. It would have been easier to say “no-fank-you” and do what was comfortable. But you made the better choice.

Our boy deals with anxiety, OCD, seizures, and lost motor skills on top of autism which makes navigating every day like tackling a ninja warrior course. Today he conquered. #ninjawarrior #Poandthefurioussix #Pureawesomeness

Posted by Sara Hague on Thursday, August 9, 2018

Later that month, we told you we were going on a family vacation. You said no at first. We never go on family vacations, because you like to stay home and relax in the living room. But you relented, and off we went, up the Oregon coast and down the cabin ramp on your scooter. You missed home, but you had a great time.

You also started to enjoy riding lessons more. Friday afternoons are a great time to come home and sit in your favorite chair for hours on end, but every week, you donned your boots and sunglasses and learned to cantor like Cowboy Pete himself. Just look at you go!

The Horse and His Laughing Boy

Major #FridayFeeling happening here… Listen to that laugh! Jack, like many kids with autism, deals with SO much frustration, so when he finds this kind of delight in anything, it warms us all to the toes. No aching here. Just pure, unfiltered joy.I know other #specialneeds parents out there can relate. Do you have a pic or video of your kid finding their happy place? I'd love to see it in the comments!Big shout out to Wild Ones Youth Ranch and our friend Beth!#asd #autism #horsetherapy

Posted by Jason Hague, Writer on Friday, November 16, 2018

Finally, last week, Miss Janae took us to that place with all the Christmas lights. When we approached the “snowless tubing” slide, you kept eying it from around the corner. Your said nothing, but your face said, “Wow, that looks scary, but I really want to try it.” When it was your turn, you almost backed out. Almost. But then, this… You went again and again, laughing all the way.

And there is more, son. So much more. There were baseball games and hikes up mountain ridges and happy trips to the Safeway. You even sat through an entire live musical, Elf Jr, to see your little brother play the part of Michael!

These are the things that make us brave: not that we do what we want to do, but that we do the hard things we are afraid of doing. This is what you did this past year. Instead of settling for just “being yourself,” you sacrificed what you wanted for the sake of others. Instead of doing the comfortable thing, you chose to grow.

Well done, son. I’m proud of you. And I’m humbled by all the things you continue to teach us.

Dad


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5 replies
  1. Christy Hunt
    Christy Hunt says:

    It is so awesome when we see our son be “brave” too, we are fortunate that he adores his older sister and will do anything for her. This past November he traveled over eight hours in a car to somewhere he had never been to sit in a crowded convention center to watch his sister graduate with her masters degree, he did perfect, can’t ask for better than that!!!

    Reply
  2. Sheila Fowles
    Sheila Fowles says:

    Hey Jack, thank you for encouraging me to be brave too. I love the way you are taking on the difficult stuff and triumphing; maybe not always. I love the way you are drawing on the depths of your dad’s (and your family’s) love and resources, helping them to grow in depth and grace just like you are too. Be blessed.
    Sheila x

    Reply

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